Personal Genome Project Study Guide
    Welcome About the PGP About the Study Guide FAQ Contact Credits
Part I: Genetic Material

Part II: Gene Transmission

Part III: Gene Expression

Part IV: Genetic Regulation

Part V: Genetics and Society

Part VI: Project Literacy





Part VI: Project Literacy
Lesson 12: Participating in the Personal Genome Project
                 Practice Test
Question 1:
Informed consent is
(select the best answer)
  A.A written agreement that permits a             researcher to inform a potential             participant about the goals of a             research project, along with the             benefits, risks, policies, and             procedures of the project
  B.Written proof, often in the form of             an entrance exam, that a participant             is truly educated about a project
  C.A binding contract between a             researcher and research subject that             includes information about how to             cancel the agreement should either             party decide to terminate the             contract
  D.A process whereby a human subject             analyzes a research project and then             provides confirmation that he or she             is informed about the project's             goals, benefits, risks, policies, and             procedures, and consents to them
Question 2:
Which of the following is one of the three ethical principles set forth in the Belmont Report?
(select the best answer)
  A.Beneficence, which guarantees             scholarships to potential             participants who can't afford the fee
  B.Equality, which ensures that human             subjects are a mix of genders and             races
  C.Respect for people so that their             autonomy is protected
   D.Justice so that participants have a             way to report any ethical abuses to             federal authorities
Question 3:
Which of the following does a Certificate of Confidentiality prevent?
(select the best answer)
  A.Compelled disclosure of identifying             characteristics of a research subject
  B.Compelled disclosure of identifying             characteristics of a research             scientist
  C.Compelled disclosure of child             abuse in the case where a              state has a mandatory reporting law
  D.All of the above
Question 4:
Which of the following is an important application of the three ethical principles in the Belmont Report?
(select the best answer)
  A.Making sure that human subjects             give informed consent
  B.Fair compensation for participating
  C.Providing treatment for diseases             discovered as part of the human             subject research
  D.Disclosure of any corporations that             provide funding for the project
Question 5:
The informed consent process for the PGP involves a set of activities. Which of the following is not one of the activities?
(select the best answer)
  A.Getting educated
  B.Passing an entrance exam
  C.Signing a consent form
  D.Going to an approved medical center             to provide tissue samples
Question 6:
Which of the following does the Belmont Report state are applications of the primary ethical principles?
(select all answers that apply)
  A.Participants should not be             compensated
  B.An agreement to participate             constitutes valid consent only if it             is given voluntarily
  C.Participants should give informed             and comprehending consent to             participate
  D.Researchers should not reveal             identifying characteristics of human             subjects