Personal Genome Project Study Guide

In addition to understanding the benefits and risks associated with participating in the PGP, in order to pass the entrance exam you will need to answer a few questions related to policies and procedures for the project. The best place to learn up-to-date information on these topics is the PGP site itself (http://www.personalgenomes.org), but this lesson discusses a few important points here.

The current plan is that PGP participants will need to follow these steps to participate:

1. Agree online to a "mini consent" form in order to get started on the PGP entrance exam. This form will ask for your name, year of birth, and email address. It will also explain that your participation is voluntary and you may refuse to participate or discontinue participation at any time.

2. Pass the PGP entrance exam. (This study guide will help you with that!)

3. Agree online to the actual consent form for participation in the research study. This is a relatively long form where you will confirm that you understand the purpose of the research and the possible risks and benefits of participating. You will also agree that a PGP researcher may decide to end your participation in the study at any time.


	Personal Genome Project Study Guide

			Part VI: Project Literacy Lesson 11: Participating in the Personal Genome Project In addition to understanding the benefits and risks associated with participating in the PGP, in order to pass the entrance exam you will need to answer a few questions related to policies and procedures for the project. The best place to learn up-to-date information on these topics is the PGP site itself (http://www.personalgenomes.org), but this lesson discusses a few important points here. The current plan is that PGP participants will need to follow these steps to participate: 1. Agree online to a "mini consent" form in order to get started on the PGP entrance exam. This form will ask for your name, year of birth, and email address. It will also explain that your participation is voluntary and you may refuse to participate or discontinue participation at any time. 2. Pass the PGP entrance exam. (This study guide will help you with that!) 3. Agree online to the actual consent form for participation in the research study. This is a relatively long form where you will confirm that you understand the purpose of the research and the possible risks and benefits of participating. You will also agree that a PGP researcher may decide to end your participation in the study at any time.