Personal Genome Project Study Guide
    Welcome About the PGP About the Study Guide FAQ Contact Credits
Part I: Genetic Material

Part II: Gene Transmission

Part III: Gene Expression

Part IV: Genetic Regulation

Part V: Genetics and Society

Part VI: Project Literacy

 

 

 

 

  Part VI: Project Literacy
Lesson 12: Human Subjects Research
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Lesson 12 Practice Test

Informed consent is a process whereby individuals assess their willingness to voluntarily participate in a research project, based on their understanding of the purpose of the project. Participants analyze the risks and benefits of participation, and the policies and procedures of the project that will affect participants, and then sign an informed consent form. The informed consent process shouldn't be just a one-time event, however. It should be an ongoing discourse that lets an individual assess whether to participate, before the research begins, and whether to continue to participate, as the research progresses.

 
For the PGP, the informed consent process involves these activities:
  1. 1.Education (that's why you're going through this study guide!)
  2. Assessment (that's why you'll take the PGP entrance exam)
  3. Consent (the signing of the actual PGP consent form)
  4. Continued reassessment of willingness to participate